Seizure update

7/20/10
Today was a fairly quiet day with
Josie again - which is a good thing. We needed some quiet and down time, it has
been such a rollercoaster until now. If you missed Marc's post on the
"wall", we have had some good news from the neurologist today. Josie
has not had any seizures since mid to late afternoon yesterday (Monday), which
means that they can start dropping and changing some of her medications to
start the process of finding the right combination. We are taking every little
"up" we can get at this point.
She did have some issues with a variable heart rate today, but the doctors and
nurses don't seem to be terribly concerned, they believe it may have something
to do with changing meds and just the nature of getting her stable.
Marc and I are going home again tonight - we debate all the time of what we
should do and finally decided that if we can get good rest and can call in to
check on her whenever we want, we are comfortable with leaving. It is very hard
to leave though, but we are only 10 minutes away if needed. She is in GREAT
hands (God's first and then the nurses and doctors).
We will keep you posted - Blessings to you all,
Marc & Darcia

Sweet Gift

7/19/10
Josie is resting very peacefully today and for that we are so grateful. She is
now on 4 different seizure meds, but they are doing that in order to stop the
seizures all together. Once that happens, they can start backing off on some of
the drugs and find the right combination for her - they really want to get her
off the seizure drug that sedates her so that she can wake up a bit more. Other
than that, she is doing quite well today - Marc and I have finally been able to
pull out some reading and paperwork that we have had in our bags since her
delivery.
On a sweet note, our friend and neighbor brought us a little gift today of a
tag blanket - which is super soft, beautiful and has her name embroidered on it
(plus she had it made in the colors of Josie's room at home - Pink and brown!).
As soon as Marc and I walked back into Josie's room, the nurse asked if we had
something soft that she could place under all the tubes and wires so they
didn't press on her belly so much. We immediately were able to give her the tag
blanket - it was perfect timing!
Blessings to you all - Marc & Darcia