Not So Quiet Josie Day...

7/18/10 Not So Quiet Josie Day...
Ok, so Josie is now having about 26 EEG electrodes attached to her head to
monitor her seizure activity. She'll also be on video. Josie has had quite a
first week! The doctors are saying that if anyone is entitled to have some
seizures, it would be Josie. She has had some tremendous trauma to her brain,
between the raquet ball size tumor and the surgery to remove part of it. So,
she is on some anti-seizure meds to control them as well. This will hopefully
keep her calm, which should help in the healing process as well.
We saw the "after" MRI photos this morning, and there appears to be
quite a difference. There's a bit more room in her head now, so that's good.
Her head circumference has gotten smaller as well. Hopefully, after a morning
of getting picked at, poked at, and fussed with, Josie will have a good
afternoon of rest and be able to work on recovering from her major surgery on
Friday.

7/18/10
Well, things have calmed down a bit since the last post. Josie now has a
breathing tube in again, to help regulate her breathing. She is on some
anti-seizure medication, hooked up to a continuous EEG to monitor any seizure
activity, and she's been somewhat sedated to help her remain calm. I think
right now there are about 42 different wires / hoses going into her or coming
out of her. Poor kiddo. This morning was a little rough for Darcia and me (I've
hijacked Darcia's account to post this). Seeing and hearing our little lady
upset, in discomfort, and struggling for breath was very disconcerting, as you
may imagine. We are feeling that the previous week is catching up to us, but
are really trying to maintain our rest and food intake, and I doing ok with
that. Thanks so much for all of your prayers, visits, notes, and visits. We lov
eyou all and really do appreciate and feel your support and prayers...