Our Happy Josie (right after a bath!)

Upper GI - MRI

January 18, 2012

Upper GI – MRI

This will be a brief update, as I am trying to write it while Josie sleeps here at the clinic getting her chemo.  Thankfully she has been doing really well with taking naps in her stroller while we are here – gives me a bit of a break from entertaining her or maybe it’s her entertaining me!   

Tomorrow, January 19 – Josie will be having an upper GI done again based on the referral from her GI doctor.  He would like to see an updated image of what is happening with her Nissan (the wrap around her esophagus).  If they can determine what is happening and if every doctor is on board, they may try and redo the Nissan.  We are a little apprehensive since it didn’t work the first time and the surgeon that did it had no rationale as to why it would not have worked.  Regardless, the last month of Josie refluxing has been extremely draining, not only on her, but on us too.  Ironically, the past few days we have seen a drastic reduction in her reflux and today was the first day in months that Josie did not reflux even once.  We completely feel like this is the wind down of one of her cycles, of which we hope to have some reprieve for a little while.  We will meet with the general surgeon next week to discuss the upper GI and what options we have for Josie and surgery. 

Our prayer is that this upper GI will show the doctors what they need to know and that both the doctors and Marc and I will have wisdom of what to do for her regarding surgery and her reflux. 

Next Thursday, January 26 will be Josie’s annual MRI.  These are always the indicating markers of what the tumor is doing and what treatment plans will follow.  We are of course on our knees about this imaging.  We will not know the results until the following week when we can meet with her oncologist see the actual MRI. 

So the next few weeks are weighing on us and are big things for our little girl to go through. 

We would appreciate prayer for each of these things. 

Finally, we are working on a blog spot for Josie that will be easier accessed by those with facebook or email.  I am working on putting all of the old posts up from the very beginning of Jo’s life and once those are added, it should be ready to go.  We will let you know when it is available – hopefully soon!

Blessings to you all,

Marc & Darcia